Online Privacy Policy

This site is owned by Shire Human Genetic Therapies (Shire HGT), a business within the Shire group of companies ("Shire"). This online privacy policy is designed to tell you about our practices regarding collection, use, and disclosure of information that you may provide via this site. Please be sure to read this entire online privacy policy before using, or submitting information to, this site.

Your consent

By using a Shire site, you signify your assent to the Shire online privacy policy. If you do not agree to this policy, please do not use our sites. We reserve the right, at our discretion, to change, modify, add, or remove portions of this policy at any time. Please check this page periodically for changes. Your continued use of our sites following the posting of changes to these terms will mean you accept those changes.

About this site

In our effort to bring you up-to-date, accurate disease and resource information, we use various expert sources and studies to develop site content. As a result, you may find slight differences in statistics and/or percentages across various articles, because different sources can view data differently. Shire is not engaged in rendering medical or similar professional services or advice via this website. If you desire or need such services or advice, you should consult a doctor or other healthcare professional.

Information we collect and how we collect it

Many of the services on our site are offered without us collecting any personally identifiable information from you. You can visit our site and view most of the content anonymously.

The information we gather on our site falls into two categories:

    (1) personally identifiable information you supply
    (2) aggregate information collected as you navigate through our site.

Personally identifiable information collection

Like many websites, this site actively collects information from its visitors by permitting you to communicate directly with us via e-mail. Some of the information that you submit may be personally identifiable information (that is, information that can be uniquely identified with you, such as your full name, address, e-mail address, and so on).

Some areas of this site may require you to submit demographic information in order for you to benefit from the specialised features. You will be informed at each information collection point what information is required and what information is optional.

Aggregate information collection

Shire cannot provide advice on personal medical matters; it is recommended that visitors consult their doctor or other healthcare professional regarding personal medical matters.

As you navigate through a website, certain information can be passively collected (that is, gathered without your actively providing the information) using various technologies and means, such as navigational data collection. This site may use Internet Protocol (IP) addresses. An IP address is a number assigned to your computer by your Internet service provider so you can access the Internet and is generally considered to be non-personally identifiable information, because in most cases an IP address is dynamic (changing each time you connect to the Internet), rather than static (unique to the particular user's computer). We use your IP address to diagnose problems with our server, report aggregate information, determine the fastest route to your computer in connecting to our site, and administer and improve the site.

We also collect information about your use of our site through cookies and similar technology.

A 'cookie' is a bit of information that a website sends to your computer that helps the site remember information about you and your preferences and recognise you as a return visitor to the site. Cookies, by themselves, do not tell us e-mail addresses or other personally identifiable information.

'Internet tags' (also known as single-pixel GIFs, clear GIFs, invisible GIFs, and 1-by-1 GIFs) are smaller than cookies and tell the website server information such as the IP address and browser type related to the visitor's computer. This site may at times use Internet tags.

'Navigational data' ('log files,' 'server logs,' and 'clickstream' data) are used for system management, to improve the content of the site, for market research purposes, and to communicate information to visitors. This site may at times use navigational data.

Use and disclosure of information

Except as otherwise stated, we may use your information to improve the content of our site, to customise the site to your preferences, to communicate information to you (if you have requested it), for our marketing and research purposes, and for the purposes specified in this online privacy policy. If you provide personally identifiable information to this site, we may combine such information with other actively and passively collected information.

We may disclose your personally identifiable information to our affiliates worldwide who agree to treat it in accordance with this online privacy policy. In addition, we may disclose your personally identifiable information to third parties located in the United Kingdom and/or any other country, but only (i) to contractors we use to support our business (e.g., fulfilment services, technical support, delivery services, and financial institutions), in which case we will require such third parties to agree to treat it in accordance with this online privacy policy; (ii) in connection with the sale, assignment, or other transfer of the business of this site to which the information relates, in which case we will require any such buyer to agree to treat it in accordance with this online privacy policy; or (iii) where required by applicable laws, court orders, or government regulations. In addition, we will make full use of all information acquired through this site that is not in personally identifiable form.

Access and correction

To keep your personally identifiable information accurate, current, and complete, please contact us as specified below. We will take reasonable steps to update or correct personally identifiable information in our possession that you have previously submitted via this site.


We take reasonable steps to protect your personally identifiable information as you transmit your information from your computer to our site and to protect such information from loss, misuse, unauthorised access, disclosure, alteration, or destruction. You should keep in mind that no Internet transmission is ever 100% secure or error-free. In particular, e-mail sent to or from this site may not be secure, and you should therefore take special care in deciding what information you send to us via e-mail. Moreover, where you use passwords, ID numbers, or other special access features on this site, it is your responsibility to safeguard them.

Links to other websites

This site may contain links or references to websites. Please be aware that we do not control other websites and that, in any case, this online privacy policy does not apply to those websites. We encourage you to read the privacy policy of every website you visit.

How to contact us

If you have any questions, comments, or concerns about this online privacy policy or about the information practices of this site, or would like to have your information removed from our files, please contact us as follows:

Shire Human Genetic Therapies
Hampshire International Business Park
Hampshire RG24 8EP

This policy was last revised July, 2012

The information on this website is intended only to provide information about Replagal (agalsidase alfa). This information should not be used in place of advice from your GP or other healthcare professional. These web pages are not intended for residents of the United States.

This website has been produced by Shire Human Genetic Therapies, a business within the Shire group of companies. The website has been developed in accordance with industry and legal standards to provide information for the general public, patients and their families, and also healthcare professionals about Replagal. Shire Human Genetic Therapies makes every reasonable effort to include accurate and current information. However, the information provided on the website is not exhaustive. References for published sources of information cited on the Replagal website have been provided on the relevant pages.

Sponsored by Shire Human Genetic Therapies.
UK Offices: Hampshire International Business Park, Chineham, Basingstoke, Hampshire RG24 8EP.